Sometimes medications don’t work.
We hear advice and treatment options all the time. We don’t want to be constantly bombarded with it. Our doctors have us on what they believe is best and messing with our treatment plan is actually dangerous.
We don’t want to hear about your mom’s sister’s friend’s child who has the same thing we have (or worse a completely unrelated stomach issue) and how they were completely cured by X, Y Z...We have tried nearly everything and nothing works for us sometimes.
Different things work for different people.
We often get sick and it’s not a result of what we ate. Don’t chastise us if we eat and get sick. We are human and it gets hard not eating and watching others enjoy food.
We never stop craving it and it doesn’t get easier. Stop telling us how great the food is that we can’t eat.
Food has become our enemy.
We don’t get used to the pain and nausea. The longer it goes on, the more depressing it can be.
This condition is debilitating. We would rather be working and enjoying our lives than staying home.
It’s not good that we are losing at least one pound a week and dropping weight rapidly. Don’t tell us you wish you had this condition to lose weight or we are lucky we are losing weight. You have no idea what we’ve had to go through to lose it and we’d rather have the weight than the sickness.
We are not lazy. We are fighting for our lives and our heath every single day.
Don’t stop inviting us out. Just because we can’t always go doesn’t mean we don’t want to be asked.
Sometimes bringing a meal for our family (so we don’t have to cook and be around food or use up our spoons) is just what we need. Also, offering to take us to appointments or do housework is something we crave so much but will rarely ask.
We will almost never ask for help and if we do yet don’t receive it, we will probably never ask again.
You’re never too young to get sick.
You cannot even imagine how much our medical bills are and how often we have to go to the doctor, get stuck with needles, or have to have surgery. Our lives are consumed by our illnesses whether we want them to be or not.
Sometimes Cancer is not always worse.
We still care about your problems. But please stop comparing them to ours.
We love you and care about you even if you can’t help.
Tell us in links or drop a line to firstname.lastname@example.org, with the subject saying 'Need To Know'.