HEDS Up!

the invisible illness magazine


The Ehlers-Danlos/HSD community is acutely aware of Joe Public's lack of awareness - and we've never needed...

Gestures come with good intent, but when People like to do things for those who are unable or vulnerable in some way...

How we can improve our healthcare by dropping the word 'rare'.  Most people with EDS/HSD have told medical...

Loads of women with EDS/HSD say their symptoms worsen at points in their monthly cycle, but not everyone realises...

Pain is a massive part of many Invisible Illnesses including EDS/HSD, and it’s often almost impossible to manage in bendy...

When it comes to using a wheelchair, things are more complex than you think...
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