As well as having Ehlers-Danlos, Mel, in her 20s, has severe Craniocervical Instability (CCI). Her skull slips on her spine and her brainstem is crushed. Cerebral Spinal
Fluid can't flow properly, and builds up causing disfiguring facial swelling and pain. Sitting causes up to 40 seizures a day, so she lives on a stretcher, neck braced.
There is hope. Surgery......But surgical complications of EDS/HSD mean Mel can't find a surgeon in the UK and she urgently needs £180,000 for surgery in the US.
Melanie has raised over £40,000 by arranging various events. Currently working alone, despite being so ill, her campaign, Melanie's Mission To Live is a testament to how desperately this young woman is fighting for her life. The next skull slip could kill her. Go directly to Mel's
page, or connect with the campaign through Mel's social media. Look out for #MMTL banners around the site too!