Regularly accused of hypochondria, Fabricated Illnesses and other psychological disorders by medical professionals who have no real knowledge of EDS - and who refuse to research it - as a collective, we've had enough and the
#ysuBTST started asking #WillYouSeeUs in September 2016.
While medics are busy looking at the wrong illnesses, patients are degenerating, being dismissed and damaged, some dying.
On average, it takes nearly a quarter of a century
to get a confirmed EDS/HSD diagnosis, despite symptoms usually being present for years (pain, vomiting, nausea, dislocations, bruising, etc).
Prompt and proper diagnosis and management can make the difference between permanent physical damage or even death, and the chance at living a life - and not just existing.